Pediatrics. Diane M. Pickles, Stacey L. Lihn, Thomas F. Boat and Carole Lannon. Feb., 2020. “A Roadmap to Emotional Health for Children and Families With Chronic Pediatric Conditions.”
The National Child Traumatic Stress Network's "Pediatric Medical Traumatic Stress Toolkit for Health Care Providers" (toolkit for parents as well)
The National Institute of Mental Health's research on Post-Traumatic Stress Disorder.
A YouTube video on Somatic Experiencing in the Prevention of Early Childhood Medical Trauma.
Information on Adverse Childhood Experiences (ACE's), of which medical trauma is one:
Substance Abuse and Mental Health Administration: Quotes/Excerpts related to children with complex medical conditions who often have traumatic medical experiences that cause chronic and toxic stress: "Adverse childhood experiences (ACEs) are stressful or traumatic events...Many studies have examined the relationship between ACEs and a variety of known risk factors for disease, disability, and early mortality...Research has demonstrated a strong relationship between ACEs, substance use disorders, and behavioral problems. When children are exposed to chronic stressful events, their neurodevelopment can be disrupted. " Eliana's Light promotes and advocates for screening of ACEs for children with complex medical conditions, especially those who likely have ACEs in the home.
The Early Childhood Innovation Network's (ECIN) work on ACEs. ECIN is a local collaborative of health and education providers, community-based organizations, researchers, and advocates promoting resilience in families and children from pregnancy through age 5 in Washington, DC.
Dr. Nadine Burke-Harris' Ted Talk on ACEs. Dr. Burke-Harris is a pediatrician who started the Center for Youth Wellness to address ACEs, and has conducted significant research in this area. Her recent book, The Deepest Well, is quickly becoming a best-seller.