Resources
We hope these resources are helpful to caregivers of children who have complex medical conditions. They are specifically for parents, members of the medical community, and providers of integrative care services. The majority of the services mentioned are for families living in or close to Washington, DC. As Eliana's Light grows, we will add information relevant to families living in other locations.
Family-Friendly Pharmacies
Click here to download a contact sheet of local family-friendly pharmacies that are familiar with medications for children who have complex medical conditions.
Local Governmental & Non-Governmental Programs & Organizations
We compile lists of other organizations and services available based on where you live. In the following sections, there are links to options for your consideration.
For DC Families: Please click here for a list that's regularly updated.
For MD Families: Please click here for a list that's regularly updated.
For VA Families: Please click here for a list that's regularly updated.
Eliana's Light Constellation Kits
Eliana's Light provides a tailored Constellation Kit for each family whose application for support is approved. Each Constellation Kit is personalized based upon the family's interests and needs. It includes items such as relevant gift certificates, tips on how to create a calming environment, distraction toys, and stress relievers. We only include safe and appropriate relaxation "tools" that caregivers and their kids will use. These kits are part of the essential support services we provide families. Click here to learn more. Click here to donate a themed or general Eliana's Light Constellation Kit to a family.
Other helpful resources we recommend
For caregivers and care providers:
Click here to access a list of other organizations and services that can potentially help you.
Click here to access a list of organizations and resources specifically related to caring for caregivers.
Click here to access a list of sources of support for siblings of children who have complex medical conditions and/or disabilities.
Click here to access tools parents can use when taking their child to, or while their child is in, the hospital.
Click here to access information on medical trauma and stress.
Click here for websites, apps, websites, apps, CDs, videos, shows, books, and services you might find useful.
Click here for lists of relevant associations, centers, and references.
For those interested in learning more about Integrative Medicine, and integrative and whole health:
Click here to access lists of research you can read on Integrative Medicine, integrative care services, and complementary care.
Click here for physicians to access Dr. Wayne Jonas' HOPE Note for adding integrative health care to a routine doctor's visit.
Click here for physicians and parents to access practical tools Dr. Wayne Jonas developed. Examples include: "Provider Pocket Guides" on therapeutic yoga, acupuncture, massage therapy, and nutrition; "Your Healing Journey", and "Taking Charge of Your Health and Wellbeing".
Click here for information on environmental hazards and toxins to try to reduce as a caregiver of a child with a complex medical condition.
Click here for information on nutrition.
Click here for information on non-drug therapies for sleep support, and here for information on how addiction impacts sleep. Both hyperlinks lead to links to additional resources that can help you get better sleep.
Click here for information on training opportunities related to integrative care services.
Eliana's Light's "Conversations With a Caregiver"
Join us on our journey of learning more about how various integrative care modalities can support the wellness and well-being of pediatric patients and their caregivers. This page contains videos of interviews we’ve done with hospital staff members and parents who have had positive experiences from using these modalities with children and/or caregivers.
Tip Sheets
Click on the hyperlink above to access tip sheets we’ve co-created with local specialists for parents of children who have complex medical conditions.